Brain Tumour Research charity noted that brain cancer is the leading cause of death among people under 40 in the United Kingdom.
The charity added that charitable organisations contribute over 75 % of the UK’s total investment in brain tumour research, while government funding accounts for the remaining 25 %.
After the announcement, Dan Knowles, chief executive of the charity, thanked Goodburn for his “tireless efforts” in raising awareness of brain cancer.
He added, “We are optimistic that this renewed focus will help translate laboratory discoveries into real‑world options for patients who desperately need them.”
The Rare Cancers Bill, championed by Edinburgh South West MP Scott Arthur, was enacted earlier this year.
The legislation seeks to encourage research and investment into rare cancers—conditions affecting fewer than one in 2,000 individuals.
However, Goodburn previously argued that the measure does not go far enough and called for a dedicated brain cancer lead to sharpen focus on research and clinical trials.
Arthur described the act as “vital” for advancing research into the condition, noting that Goodburn’s meeting with the Prime Minister could spur additional progress.
“There is a genuine opportunity in the sector to break down the long‑standing barriers to research that charities, clinicians, and researchers have faced for decades,” he said prior to the meeting.
“Having met Archie on several occasions, I know he is a fantastic advocate for the brain tumour community.”
“I hope his meeting with the prime minister will translate into concrete progress.”